Who are we

The association

The association

A voluntary organization, a leader for the cause of children and all people suffering from sickle cell anemia in Quebec. We educate families on lifestyle habits and personal adaptation skills to this disease.

Who are we ?

The Quebec Sickle Cell Disease Association is a social action and family education organization. We are the leader in the quest to improve the health of children with this disease. We seek to help improve the quality of life of families grappling with this heavy responsibility. Because of its proximity to families, its extensive knowledge of the family unit, the association benefits from a privileged reputation to promote:

  • Adaptation of a service plan to the realities of families (natural caregivers);
  • Adaptation of the family organization to the requirements of the adapted services plan;
  • Optimal use of the resources of the service plan: family, hospital, community.


The Sickle Cell Disease Association of Quebec (AAFQ) has been incorporated since 2000 as a charitable organization with the Canada Revenue Agency.

Mission

The Sickle Cell Disease Association of Quebec is a voluntary organization, a leader for the cause of children and all people suffering from sickle cell anemia in Quebec. We educate families on lifestyle habits and personal adaptation skills to this disease.

HISTORICAL

The AAFQ has been incorporated since March 25, 1999 and has a business number attesting to its registration as a charitable organization from the Canada Revenue Agency:

87130 5389 RR 0001

On December 22, 2008, the UN General Assembly unanimously adopted Resolution A / 63/237 recognizing sickle cell disease as a public health problem and formalizes June 19 of each year as international sickle cell anemia awareness day.

Board of directors

wilson
Wilson Sanon
President
daphne
Daphnée Gousse
Vice-President
Office Agent Shareholder Services
Fondaction CSN
vanessa
Vanessa Francis
Treasurer
Nurse Ciuss from East Montreal
Medical technician 51 Field ambulance
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Woodlyn Orvil
Secretary
Workday
HR-Payroll IT Solution Consultant
Mme-Gina-1
Gina-Mai Simmons-Coley
Member
Héma-Québec
Nurse
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GAndriana Geneviève Kouakou Affoué
Member
Daniel-Bonzil-1
Daniel Bonzil
Member & Head of the Outaouais AAFQ section

Our partners