Who are we

The association

Objectives and Services

We educate families on lifestyle habits and personal adaptation skills to this disease.

Main goals

  • Fight the isolation and exclusion of patients and their families through appropriate activities.
  • Make people at risk aware of voluntary screening for the disease.
  • Promote the need for blood donation in the black community.
  • Support research.
  • Offer family respite to families.

Activities and services

  • Conference, references, listening and support.
  • Blood drives in collaboration with Héma-Québec.
  • Development and distribution of educational material on the disease.
  • Education and disease prevention in schools, churches and community centers.
  • Family support.


  • Family respite center to break isolation
  • Donation of advanced equipment for specialized care
  • Scholarship program
  • Clinical research funds

Our partners