The association

The Sickle Cell Association of Québec is a volunteer organization and a  leading source of solace to children and anyone suffering from sickle cell disease. We educate families on lifestyle practices and personal coping skills for living with this condition.

Who are we ?

The Sickle Cell Association of Quebec is dedicated to educating families and promoting social change. We are trailblazers in our quest to improve the quality of life for children who suffer from sickle cell anemia. We strive to help alleviate the burden this condition places on families. Through our expertise and close ties to the families we work with, the association is in a privileged position to promote:

  • A customized service plan that is adapted to the reality of families;
  • Adjustments to family organization in response to customized service plans;
  • The best use of service plan resources available including family, health care and community services.

The Sickle Cell Anemia Association of Quebec has been a registered charitable organization with Canada Revenue Agency since the year 2000.


The mission of the Sickle Cell Anemia Association of Quebec (SCAQ) is to provide much-needed support to the children and families who suffer from this serious genetic blood disorder. The association is constantly striving to bring awareness to the general public and decision makers in order to improve medical care for patients.


The AAFQ is registered since March 2nd, 1999 as a volunteer organism of the Canada Revenue Agency. It’s registration number is 87130 5389 RR 0001

On December 22nd, 2008 the UN General Assembly unanimously adopted the A/63/237 Resolution acknowledging sicle cell anemia as a public health issue and officialized June 19th as the World sickle Cell Anemia Awareness Day.

Board of administrators

Wilson Sanon, President

Daphnée Gousse, Vice-President

Shareholder Services

Fondaction CSN

Vanessa Francis, Treasurer

Ciuss nurse in the east of Montreal

Medical technician 51 Field ambulance

Woodlyn Orvil, Secretary


HLM Solution Consultant

Gina-Mai Simmons-Coley, Membre



GAndriana Geneviève Kouakou Affoué, Membre

Daniel Bonzil, Membre & Head of Outaouais AAFQ


The generosity of the partners plays a key role in the development and growth of the Sickle Cell Anemia Association of Quebec. Their support is invaluable. We thank them from the heart.