A patient database will be instrumental in recording trends in hospitalization, treatment and their follow-up, medications, transfusion and have statistics on morbidity (disease type, gender, age) and mortality rates. Having a database allows for structured and prospective data compilation with a minimum of redundancies and greatly facilitates future research. It is our main goal with this project to insure: data traceability, result analysis from different services, securely perform updates.
This medical database project is in line with our mission to improve quality of life and health for children with sickle anemia. The database will improve patient’s file management, treatment plans and follow-ups for children and adults.
The generosity of the partners plays a key role in the development and growth of the Sickle Cell Anemia Association of Quebec. Their support is invaluable. We thank them from the heart.