The sickle cell disease is more prevalent than any other genetic disease such as cystic fibrosis , Phenylketonuria (PKU ) , Hemophilia , Tay -Sachs and muscular dystrophy. According to the World Health Organization (WHO) , sickle cell anemia is recognized as one of the 4 plagues , as well as malaria, AIDS and tuberculosis.

Some statistics:

1/10 Black people has the gene for sickle cell disease.
1/400 child of the community at risk is reached
When both parents have the trait of the disease, there are 25 % chance that the child is sick.
More than 300 000 children are born each year worldwide with the disease and 50% will not reach their fifth birthday in absence of support from birth. Sickle cell anemia is more common than hemophilia , muscular dystrophy , cystic fibrosis and many others.
In Canada, as in Quebec, there is very little data despite its prevalence and chronicity ; she is very little known and very few resources are allocated to help the sick , although many human consequences and unhappy.

comp-anemie-malaldieThe sickle cell disease

The sickle cell disease is a group of hereditary diseases the most common are the SICKLE CELL ANEMIA and S / thalassemia In general , the term sickle cell disease is used to describe a group of genetic blood disorders of red blood cells characterized by a predominance of hemoglobin S. the main manifestations of the disease are chronic anemia and organ damage caused by the obstruction of blood flow.

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Young slimming girlThe effects of the disease

Sickle cell anemia is a chronic disease with very painful crises that occur repeatedly throughout the life of sufferers. This pain is a symptom that haunts sickle cell disease patients , their parents and carers.

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Pretty female biologist holding a manual pipette with sample froCare and treatment

Currently sickle cell disease is incurable, but adequate medical care can prevent the effects . Pain in the person with sickle cell disease, because most often it will re-offend , should be treated quickly and effectively . Repeated pain, by the way they are experienced , have an impact on the psychological development and the child’s physical and his way of feeling the painful crises that will occur again and again.

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Partners

The generosity of the partners plays a key role in the development and growth of the Sickle Cell Anemia Association of Quebec. Their support is invaluable. We thank them from the heart.